Mentoring realizowany w procesie adaptacji zawodowej pielęgniarek a ich wartości zawodowe, wrażliwość moralna i zdolności opiekuńcze
DOI:
https://doi.org/10.12923/pielxxiw-2026-0021Słowa kluczowe:
wykluczenie społeczne, polityka zdrowotna, niezaspokojone potrzeby zdrowotne, upośledzenie umysłowe, gotowość edukacyjnaAbstrakt
MENTORING REALIZOWANY W PROCESIE ADAPTACJI ZAWODOWEJ PIELĘGNIAREK A ICH WARTOŚCI ZAWODOWE, WRAŻLIWOŚĆ MORALNA I ZDOLNOŚCI OPIEKUŃCZE
Wprowadzenie. Osoby z niepełnosprawnością intelektualną często napotykają poważne trudności w dostępie do odpowiednich usług opieki zdrowotnej. W literaturze naukowej zwraca się jednak uwagę na szereg niezaspokojonych potrzeb zdrowotnych oraz kwestie związane z ogólnym samopoczuciem.
Cel pracy. Określenie i ocena poziomu dobrostanu oraz niezaspokojonych potrzeb zdrowotnych opiekunów osób z niepełnosprawnością intelektualną na podstawie aktualnego stanu literatury międzynarodowej. Niniejszy artykuł ma na celu podsumowanie i krytyczną analizę dostępnych danych, ze szczególnym uwzględnieniem głównych obciążeń psychospołecznych, wyzwań emocjonalnych oraz luk w zakresie opieki i wsparcia, z jakimi boryka się ta grupa społeczna.
Metoda. W okresie od stycznia do lutego 2025 r. przeprowadzono przegląd systematyczny. Poszukiwano artykułów dostępnych w języku greckim lub angielskim. Wykorzystano następujące bazy danych: PubMed, Medline, CINAHL, Scopus, Cochrane oraz ISI – Web of Science.
Wyniki. Stan zdrowia tej grupy ludności jest wyraźnie gorszy w porównaniu z ogółem społeczeństwa, co wynika z niezaspokojonych potrzeb zdrowotnych, niewystarczającej liczby wyspecjalizowanego personelu medycznego i pracowników służby zdrowia oraz dominacji modelu medycznego. Model ten postrzega niepełnosprawność intelektualną jako trwały, nieodwracalny stan, który leczy się przede wszystkim za pomocą farmakoterapii o działaniu hamującym.
Bibliografia
1. Harrison JAK, Thomson R, Banda HT, et al. Access to health care for people with disabilities in rural Malawi: what are the barriers? BMC Public Health. 2020;20(1):833. https://doi.org/10.1186/s12889-020-08691-9
2. Kinnear D, Morrison J, Allan L, et al. Prevalence of physical conditions and multimorbidity in a cohort of adults with intellectual disabilities with and without Down syndrome: cross-sectional study. BMJ Open. 2018;8:e018292. https://doi.org/10.1136/bmjopen-2017-018292
3. Sheehan RB, Herring MP, Campbell MJ. Associations between motivation and mental health in sport: a test of the hierarchical model of intrinsic and extrinsic motivation. Front. Psychol. 2018;9:707. https://doi.org/10.3389/fpsyg.2018.00707
4. Noll S. & Trent J. Mental retardation in America: a historical reader. NY: New York University Press; 2004, p. 506.
5. Kaplan R. & Saccuzzo D. Psychological testing: principles, applications, and issues. Mason OH: Nelson Education; 2017.
6. Argyriadis A, et al. Health promotion strategies for cardiovascular disease in the community of Uganda: Policies, challenges, and pathways to a healthier future. International Journal of Science and Research Archive. 2023;10(01):360-365. https://doi.org/10.30574/ijsra.2023.10.1.0759
7. Maulik, P. K., Mascarenhas, M. N., Mathers, C. D., Dua, T., & Saxena, S. (2011). Prevalence of intellectual disability: A meta-analysis of population-based studies. Research in Developmental Disabilities, 32(2), 419–436. https://doi.org/10.1016/j.ridd.2010.12.018
8. McBride O, Murphy J, Shevlin M, et al. Monitoring the psychological, social, and economic impact of the COVID‐19 pandemic in the population: Context, design and conduct of the longitudinal COVID‐19 psychological research consortium (C19PRC) study. International journal of methods in psychiatric research. 2021;30(1):e1861. https://doi.org/10.1002/mpr.1861
9. Tatuskar P, Vandana V. Mental retardation and oral health: An insight. JCIM. 2021;2(6):1397. https://doi.org/10.52768/2766-7820/1397
10. United Nations, Political Participation of Persons with Intellectual or Psychosocial Disabilities, 2021, Retrieved at 05/11/2024, available at: https://www.undp.org/ publications/political-participation-persons intellectual-or-psychosocial-disabilities
11. Council of Europe Convention for the Protection of Human Rights and Dignity of the Human Being with Regard to Biology and Medicine: A Convention on Human Rights and Biomedicine, Oviedo, 4 April 1997, in force 1 December 1999, ETS No. 164.
12. Argyriadis A, et al. Translation and validation in Greek of the Central Vancouver Island Multicultural Society Cultural Competence Self-Assessment Checklist for health professionals. Population Medicine. 2022;4:16. https://doi.org/10.18332/popmed/150202
13. World Health Organization. Atlas: global resources for persons with intellectual disabilities: 2007. Switzerland: World Health Organization Press. Retrieved 14/01/24 at https://tile.loc.gov/storageservices/master/gdc/gdcebookspublic/20/21/76/32/ 35/2021763235/2021763235.pdf
14. Vlachou A, Didaskalou E, Papananou I. Conceptual approaches to disability and their implications for the education of people with disabilities. In: Zoniou-Sideri A, Nteropoulou-Nterou E, Vlachou-Balafouti A (eds.). Disability and educational policy: A critical approach to special and inclusive education. Athens: Pedio; 2012, p. 65-89.
15. Reynolds JM. “I’d rather be dead than disabled” – The ableist conflation and the meanings of disability. Review of Communication. 2017;17(3):149-163. https://doi.org/10.1080/15358593.2017.1331255
16. Smart JF, Smart DW. Models of disability: Implications for the counseling profession. Journal of Counseling & Development. 2006;84(1):29-40. https://doi.org/10.1002/j.1556-6678.2006.tb00377.x
17. Oliver M. The politics of disablement, UK: Palgrave Macmillan;1990.
18. Beaudry JS. Beyond (models of) disability? The Journal of Medicine and Philosophy: A Forum for Bioethics and Philosophy of Medicine. 2016;41(2):210-228. https://doi.org/10.1093/jmp/jhv063
19. Reindal SM. Disability, capability, and special education: Towards a capability‐based theory. European Journal of Special Needs Education. 2009;24(2):155-168. https://doi.org/10.1080/08856250902793610
20. Durbin A, Sirotich F, Lunsky Y, et al. Unmet needs of adults in community mental health care with and without intellectual and developmental disabilities: a cross-sectional study. Community Ment. Health J. 2017;53:15-26. https://doi.org/10.1007/s10597-015-9961-6
21. Nicholson E, Doherty E, Guerin S, et al. Healthcare utilisation and unmet health needs in children with intellectual disability: a propensity score matching approach using longitudinal cohort data. J. Intellect. Disabil. Res. 2022;66(5):442-453. https://doi.org/10.1111/jir.12927
22. Gilliand M, Bernier Emch A, Perrenoud B. Adults with intellectual disabilities’ satisfaction regarding their hospitalization: A correlational descriptive study. Journal of Intellectual Disabilities. 2024;28(4):1137-1154. https://doi.org/10.1177/17446295231193461
23. Emerson E, Brigham P. The developmental health of children of parents with intellectual disabilities: cross sectional study. Res. Dev. Disabil. 2014;35(4):917-921. https://doi.org/10.1016/j.ridd.2014.01.006
24. Trent JW. Inventing the feeble mind: a history of mental retardation in the United States. USA: University of California Press; 1995.
25. Kinnear D, Morrison J, Allan L, et al. Prevalence of physical conditions and multimorbidity in a cohort of adults with intellectual disabilities with and without Down syndrome: cross-sectional study. BMJ Open. 2018;8:e018292. https://doi.org/10.1136/bmjopen-2017-018292
26. Krahn GL, Hammond L, Turner A. A cascade of disparities: health and healthcare access for people with intellectual disabilities. Ment. Retard. Dev. Disabil. Res. Rev. 2006;12(1):70-82. https://doi.org/10.1002/mrdd.20098
27. Argyriadis A, Argyriadi A, Kopanakis E, et al. Mindfulness in nature: Promoting mental health and well-being for young children. Pol. Merkur. Lekarski. 2024;52(6):698-705. https://doi.org/10.36740/Merkur202406112. PMID: 39951637.
28. Ouellette-Kuntz H, Garcin N, Lewis ME, et al. Addressing health disparities through promoting equity for individuals with intellectual disability. Can. J. Public Health. 2005;96:S8-22. https://doi.org/10.1007/BF03403699
29. Argyriadis A, Katsarou DV, Drakopoulou O, et al. A mental health framework for resilience in children with chronic health conditions. [In:] Effective Practices for Mental Health Promotion in Education. Hershey (PA): IGI Global. 2025; p. 225-246. https://doi.org/10.4018/978-1-6684-9606-1.ch011
30. Sheehan R, Lunsky Y, Hassiotis A. Achieving better health for people with intellectual disability: the power of policy. BJ. Psych. Open. 2018;22;4(2):47-48. https://doi.org/10.1192/bjo.2017.9
31. Wagstaff J. Ethical issues in social work: adults with intellectual disabilities. CINAHL Information Systems. 2022. retrieved 03/09/23 at https://www.ebsco.com/sites/ default/f iles/acquiadam-assets/Social-Work-Reference-Center-Care-Sheet¬Ethical-Issues-in-Social-Work.pdf
32. Argyriadi A, Katsarou D, Patelarou A, et al. Digital Stress Scale (DSC): development and psychometric validation of a measure of stress in the digital age. Int. J. Environ. Res. Public Health. 2025;22(7):1080. https://doi.org/10.3390/ijerph22071080
33. Gormez A, Rana F, Varghese S. Pharmacological interventions for self-injurious behaviour in adults with intellectual disabilities: Abridged republication of a Cochrane systematic review. J. Psychopharmacol. 2014;28(7):624-632. https://doi.org/10.1177/0269881114531665
34. Emerson E, Brigham P. The developmental health of children of parents with intellectual disabilities: cross sectional study. Res. Dev. Disabil. 2014;35(4):917-921. https://doi.org/10.1016/j.ridd.2014.01.006
35. Haveman M, et al. Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. J. Intellect. Dev. Disabil. 2011;36(1):49-60. https://doi.org/10.3109/13668250.2010.549464
36. Wasfi R, Steinmetz-Wood M, Levinson D. Measuring the transportation needs of people with developmental disabilities: A means to social inclusion. Disabil. Health J. 2017;10(2):356-360. https://doi.org/10.1016/j.dhjo.2016.10.008
37. Abbott S, McConkey R. The barriers to social inclusion as perceived by people with intellectual disabilities. J. Intellect. Disabil. 2006 Sep;10(3):275-87. https://doi.org/10.1177/1744629506067618
38. Ali A, et al. A pilot randomised controlled trial of befriending by volunteers in people with intellectual disability and depressive symptoms. J. Intellect. Disabil. Res. 2021; 65(11):1010-1019. https://doi.org/10.1111/jir.12886
39. Stünkel-Grees N, Clausen J, Wünsch A. Ambulante Psychotherapie für Kinder und Jugendliche mit geistiger Behinderung (Outpatient Psychotherapy for Children and Adolescents with Intellectual Disability). Prax Kinderpsychol Kinderpsychiatr. 2018.67(3):224-238. https://doi.org/10.13109/prkk.2018.67.3.224
40. Hirdes JP. et al. The interRAI Suite of Mental Health Assessment Instruments: An Integrated System for the Continuum of Care. Front. Psychiatry. 2020;10:926. https://doi.org/10.3389/fpsyt.2019.00926
41. Wang A, et al. Effects of a school-based physical activity intervention for obesity, health-related physical fitness, and blood pressure in children with intellectual disability: a randomized controlled trial. IRJPEH. 2022;19(19):12015. https://doi.org/10.3390/ijerph191912015
42. Ring H, et al. Training nurses in a competency framework to support adults with epilepsy and intellectual disability: the EpAID cluster RCT. Health Technol. Assess. 2018;22(10):1-104. https://doi.org/10.3310/hta22100
43. Collins A, Rentschler R, Williams K, et al. Exploring barriers to social inclusion for disabled people: Perspectives from the performing arts. Journal of Management & Organization. 2022;28(2):308-328. https://doi.org/10.1017/jmo.2021.48
44. Oulton K, Wray J, Kenten C, et al. Equal access to hospital care for children with learning disabilities and their families: a mixed-methods study. Southampton (UK): National Institute for Health and Care Research; 2022. https://doi.org/10.3310/NWKT5206
45. McConkey R, O’Hagan P, Corcoran J. Parental perceptions of family-centred supports for children with developmental disabilities. Int. J. Environ. Res. Public Health. 2023;20(5):4205. https://doi.org/10.3390/ijerph20054205
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Prawa autorskie (c) 2026 Grażyna Rożek, Piotr Szulich, Marianna Liliana Charzyńska-Gula, Beata Dobrowolska (Autor)
Utwór dostępny jest na licencji Creative Commons Uznanie autorstwa 4.0 Międzynarodowe.
